My daughter is suffering from what I believe is Misohphonia. For her it’s the “S” sound. She can no longer go to church, talking in the car is a big trigger for her. Songs on the radio are OK but talk on the radio is not. Certain characters on TV have to be muted. Her triggers and reactions are getting worse. I’m having a very difficult time finding a Dr. who can help. I’ve talked to O.T’s, neuro-psychologists, and our pediatrician. None of them have even heard of it. As a parent it’s very frustrating not being able to help her. There doesn’t seem to be much research done. My heart breaks for her.
Your daughter is very lucky to have you as her support system. There isn’t much you can do but try to not make noises that trigger her. Just acknowledging her is something a lot of sufferers don’t have. I know it is frustrating for you and your daughter. Both sides feel guilty because many times neither can help what they are doing or feeling. My mom has some of the worst triggers for me and they are all things she can’t help. Just never get angry at her because of her misophonia, because it is truly a struggle every day. It could also help (with her permission) to talk to her teachers so they can try and help accommodate her as well. Best of luck and thank you for being such a caring mother.
Survey of Sound Sensitivity
As part of my PhD research on sound sensitivity and how we “tune in” and “tune out” of sounds I have launched a website which aims to find out how individual’s with sound sensitivity conditions such as misophonia experience sound.
Your participation would be greatly appreciated!!
The knowledge gained from this worldwide study will be a huge step forward in understanding and helping people who suffer from sensitivity to sounds.
Thanks for your time!
Warning: this test does ask you to listen to certain sounds that could be very triggering just so you are all aware
Anonymous said: I just wanted to say that last anon was pretty true! The people closest to me are the ones that trigger me the most, (mostly my mom) and it sucks that now my brain just associates my mom with a bad feeling, and i cant be in the room with her for very long until i have to get away.. I hate it bc i love my mom a lot, and i have tried to tell her about misophonia many times, but she thinks its nothing, that im just an overreacting teenager... I've printed out info, i just dont want her to feel bad.
Give her the info you found! Tell her you love her and you just want her to understand how you are feeling. It may go better than you think if you all try to sit down, talk it out, and try to work something out between the two of you where noises are concerned.
Anonymous said: Is it OK to self diagnose misophonia?
Sometimes that’s all you can do! If you can’t find a doctor or don’t have the money then its not always possible to get formally diagnosed. Short answer: Yes it is okay, but if you need certain accommodations getting a diagnosis may be better to help back you up
Recent Experiences with Misophonia
First I need to say that I haven’t been diagnosed with having misophonia. But after doing some research recently, I certainly identify with having it. My triggers include beeping sounds, my step-father’s high-pitched hearing aides, certain voices, crowded and loud areas, certain bodily movements like tapping of hands on a table. Generally, when I encounter these noises, I try to remove myself from them. But that’s not always possible, and that’s when I start to feel cornered and agitated.
Then when you throw in other issues like problems with authority, any type of criticism from others, etc, well, it just makes for a very difficult time, trying to socialize with people. I’m 48 now, and it’s just been getting worse as I age. I’ve been seeing a neurologist for some headache issues recently, and that’s been working out very well. I see him again for a followup appointment this week. I want to bring this up with him, but I’m dreading any potential criticism on his part. But I’ve got to do something. In the past three months I’ve had screaming encounters with strangers, co-workers, and family members potentially because of misophonia.
I understand criticism is very hard when the problems you have to deal with are real and are extremely difficult to deal with. I’m glad they are helping you though! Feel free to print out that doctor’s note I posted a while back and try and explain the best you can. If it doesn’t go well with him find a new doctor who is willing to listen! Therapy and neurofeedback may also be very beneficial to you. Good luck and I am always here to help the best I can! :)
illprobablystayonplanetearth said: Hello. This is not a question but it is a suggestion for people with misophonia. I have started listening to white noise on my phone. The one I listen to is called White Noise Therapy and there are various tracks you can choose from, but they are all white noise. You can get it on iTunes/spotify/whatever. And if you have an iphone there is something called Relax Melodies (by iLBSoft). It has rain and nature noises and other stuff like that. I use it along with the white noise and it helps a lot.
Thank you! Everyone should try this…I just downloaded them myself :)
ichigokurozaki said: Hi, I self-diagnosed myself with misophonia and I want to see somone to actually diagnose me. What kind of doctor should I go see?
This question has been asked a lot. The best person to see would be an audiological physician, but you can’t find them just anywhere. You could also go to an ear nose and throat doctor. If you don’t have either in your area, just go to your family doctor and they can refer you to someone who can help :)
Anonymous said: Can it be triggered by a certain song? Because for no reason the intro to Sweet Child of Mine by Guns'n'Roses makes me rage and I can't control it no matter what. My friends play it and try to annoy me but they don't understand how much it physically and mentally pains me when they play it.
Repetitive noises seem to be a trigger for a lot of people. That song’s intro does get repetitive and I can see how it could trigger you. That is not okay for your friends to do so try explaining to them how much it hurts you…if they still won’t listen then they aren’t the kind of people you need to be around. Find people who surround you with positivity and not people who find your pain humorous.
Anonymous said: I know misophonia can get worse as you get older and I was wondering how common it is for that to happen? I'm still in my teens so I have a lot of time ahead of me for it to get worse and im nervous about that. Thanks!
Im not sure exactly how common it is, but it seems to get worse for the majority of people I have talked to. Try not to worry about it…there is more research happening so it may not get that much worse for you! We can all sympathize though so know that you’re not alone. The best thing we can do now is spread awareness so more research will continue
Anonymous said: I experience both asmr and misophonia. You should look into sensory processing disorder anon!