beaubeautylove asked: I am visiting my doctor today to finally (hopefully) be diagnosed with misophonia. I've known it for as long as I can remember. Nobody believes me, my family purposely laugh and think I'm attention seeking. I just want some advice on how to tell my doctor

I’m not sure whether you’re telling your primary care doctor or a specialist or someone, but either way, remember to be confident. My doctor told me I was being a crybaby (I don’t go to her anymore and only talk to my psychologist about it). Do not call yourself crazy, do not put yourself down while talking about it. Say how you think it might be an anxiety disorder and you’ve had to research it because it’s been affecting your life so much. Don’t back down. Don’t let a doctor dismiss you for something that affects your well being, because I’ve had plenty just look at me, smile sweetly and wave me off. 

I just want to say: don’t act like you know more, but be informed. Maybe bring in a couple of printed papers from a wiki, maybe a good resource we have on here. Ask them if there’s anything they can do or recommend, maybe give you a referral to a therapist/social worker/counselor whathaveyou, because that’s what helped me the most. My therapist treats it like it’s anxiety, and it’s worked so far with all the coping mechanisms she’s given me. 

Don’t be afraid. I know I’m talking about a negative experience, but I just don’t want anyone to be afraid to mention it to a doctor. And if they do dismiss you, don’t give up.In this kind of situation where your livelihood is affected by a disorder and a doctor won’t even look into it, they’re not the final word. If you know you need more help, go somewhere else. I know doctors are in positions of authority (rightly so) and you should listen to them as they are most likely right, but I know especially in America mental health treatment comes difficult for doctors, especially just a primary care physician. 

So good luck, stay confident, breathe. You got this. People care about you, even if sometimes it feels like they don’t. You’ll be okay! Good luck! 

Anonymous asked: Hi, sorry don't know wether this has been asked or not yet, but I suffer from misophonia, obviously, and recently I've been trapped at home and I've been triggered a hell of a lot and I've recently developed a tic of sorts. When I hear a trigger noise my head does this little involuntary snap to the left, I didn't even realise till my mum complained at me for it. So I was wondering whether tics were a common thing with misophonia or not? Thanks, also this blog is a big ball of awesomeness!

I’m not sure if it’s a “tic” or just a reaction but I know I do that all the time. The second I hear a triggering noise my head instantly snaps to find it, and then I keep looking at the source of the sound with a stinkeye hoping I can make it go away through sheer force of will haha.

Anonymous asked: For everyone dealing with this alone in high school, i recommend going to talk to your guidance counselor. Mine has given me a ton of options and it really helps to have someone who understands.

Thank you! I recommend this as well. Guidance counselors (good ones) are there to make your life easier, and can help you, say, get a separate room during a testing day, or talk to other problem students. It’s also someone you can just talk to, and if they feel like you need more help they can usually lead you to the school psychologist (if you have one) and they can lead you to even more options for treatment. 

Anonymous asked: Do you respond to all your asks? I asked for some advice and didn't hear back.

Unfortunately I get so many messages that are almost exactly the same that it’s hard for me to get back to every single one. I try to answer ones that I know what to do with, advice I can give. I hope that the ones I do answer can help with other situations people ask about, that’s why I have the “coping with misophonia” tag to help people browse other situations and solutions. 

Thing is that people message this blog asking for a diagnosis, or ask for a solution to an impossible problem, or ask questions that I’ve already answered. I don’t want to be a pessimist or let anyone down, but I’m not a medical professional and I’ve got a lot on my plate, too. 

I should make a FAQ, I know, and I’ll try to get around to it. I’m sorry I didn’t respond but it’s hard for me, and I know how hard this disease is and how debilitating it is and I’m sorry for that. I try to help in whatever way I can.

Anonymous asked: How can I contact the manager of this blog?

right here, hello! 

Anonymous asked: I agree with the second person, but I have noticed that it's usually more difficult for me when I'm already stressed/anxious, not because noises are 'more' triggering, but because it's easier to push me into an attack since I'm already closer to one, in a sense?

Yes. I’ve noticed that when I’m in a weaker state, emotionally, I’m more easily triggered because I don’t have my fortitude up. Like lately I’ve been really sick and when I get sick I’m not as happy or able to cope with things as when I’m happy- so my roommate’s usual sounds have been driving me up the walleven though I can usually deal with them.

And someone commented recently that their likeliness to be triggered lowered when they took anti-anxiety and anti-panic medication, and I agree. Ever since I started Lexapro (an anti-depressant and anxiety reducer) a year ago, I’ve been much better misophonia wise and have been able to cope with sounds better. 

Though I don’t recommend just going and taking an anti-depressant just for misophonia (because dang you gotta think about that and they can be harmful sometimes) I would not be against someone talking to their psychologist/psychiatrist/therapist/trusted medical adviser about taking some anxiety reducing medication, because I definitely think misophonia is linked to anxiety. 

flockofflamingos asked: to the previous anon: I can only speak for my /own/ experience (so it may be different for others), but for myself, the noise triggers occur whether I'm feeling anxious or not. I can be perfectly at ease/happy/etc. and a noise will instantly set off my misophonia. It may be worse if I'm already feeling stressed/anxious, but my current state of mind doesn't affect my reaction too much.

Thanks.

Anonymous asked: is this like linked to anxiety? like is it anxiety that causes us to hear and react to the noises or is it because we hear the noises that anxiety can kick in?

I don’t know. I tell people that it triggers my anxiety and I’m having a panic attack, because people understand that more. 

To be honest I am no professional and I am not a professional consultant who can give answers about these kinds of things. I always get messages asking about the technical things about this order but I can only make speculations. 

Anonymous asked: About pronunciation: I say it "miso" like miso soup. I've heard it that way from my hearing specialist, but that's just one idea.

Okay.

Anonymous asked: what is the correct way to pronounce this disorder? is it 'misso' or 'meso'?

I pronounce it “misso” but honestly I don’t know. 

Misophonia is a form of decreased sound tolerance characterized by extreme and irrational reactions (panic, despair, rage, etc.) when exposed to sounds, and occasionally visuals, that most people ignore or experience as background, i.e. chewing noises or tapping.

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